Kiley Proffitt is the founder of Jacks Generosity, an Oklahoma non-profit that aims to raise awareness about rare diseases.It's a story Proffitt knows all too well through her own son.WATCH: 'We're proud of them': non-profit spr eading awareness on rare diseases 'We're proud of them': non-profit spreading awareness on rare diseasesJack spent his entire life in the NICU, he was seven weeks old when he passed away," she said. "At three weeks of age, we found out that Jack had a rare mitochondrial disease that was causing all of the symptoms that he had presented since right after delivery.After the struggles she faced, Proffitt tells me she wanted to make it easier for families with rare diseases to cope with the emotional and physical obstacles they may face.She says the non-profit directly helps community members and donates money to groups like the Cure ARS organization that helps with researching and providing support to families who are facing rare mitochondrial diseases. Jacks Generosity supports NICU families by delivering comfort boxes to them," said Proffitt. "These have clothing for baby, comfort items for mom, they can be fuzzy socks, toiletries for Mom, Dad, and also some things for siblings," she said.Proffitt also said without fundraising events, the organization wouldnt be able to fund its good deeds.In fact, the organization is having its next unique jeans fundraising event on April 25. She said this year, there will be a panel discussion, silent auction, entertainment and dinner.I just feel like it's important for us to give hope to those families," said Proffitt. "By showing them that we're proud of them for continuing to show up every day regardless of their situation."Stay in touch with us anytime, anywhere -- 2 News Oklahoma on your schedule | Download on your TV, watch for free. How to watch on your streaming device Download our free app for Apple, Android and Kindle devices. Like us on Facebook Follow us on Instagram Watch LIVE 24/7 on YouTube ...read more read less